Linking up with others

Online forum for people with ALS/MND.

Location
  • ACT
  • NSW
  • NT
  • QLD
  • SA
  • TAS
  • WA
  • VIC
TypeUnknown
Operated byALSForum

Care coordinators and case managers assist people to access health and community services.

Location
  • ACT
  • NSW
  • NT
  • QLD
  • SA
  • TAS
  • WA
  • VIC
TypeVarious private and public
Operated byPublic or private practitioners

Education and advocacy promoting health policy and health services for all people with chronic illnesses.

Location
  • ACT
  • NSW
  • NT
  • QLD
  • SA
  • TAS
  • WA
  • VIC
TypeNon-profit organisation
Operated byChronic Illness Alliance

A counsellor registered with the Australian Counselling Association provides counselling on the psychological and emotional aspects of living with motor neurone disease.

Location
  • ACT
  • NSW
  • NT
  • QLD
  • SA
  • TAS
  • WA
  • VIC
TypeVarious private and public
Operated byPublic or private practitioners

A clinical psychologist has specialised training in the assessment and diagnosis of mental health problems and the assessment and treatment of a wide range of psychological problems.

Location
  • ACT
  • NSW
  • NT
  • QLD
  • SA
  • TAS
  • WA
  • VIC
TypeVarious private and public
Operated byPublic or private practitioners

A social worker provides counselling on the psychological and emotional aspects of living with motor neurone disease.

Location
  • ACT
  • NSW
  • NT
  • QLD
  • SA
  • TAS
  • WA
  • VIC
TypeVarious private and public
Operated byPublic or private practitioners

MND Advisors are qualified health professionals with specific local knowledge and experience of working with people living with MND and their families.

Location
  • ACT
  • NSW
TypeNon-profit organisation
Operated byMND NSW

One-day forum about MND for people living with the disease, their families and friends. Experts in the field give presentations on a variety of topics relating to MND and participants are encouraged to ask questions throughout the day.

Location
  • NSW
TypeNon-profit organisation
Operated byMND NSW

For people living with and affected by MND to share experiences and support with each other about the challenges of living with MND.

Location
  • ACT
  • NSW
  • NT
  • QLD
  • SA
  • TAS
  • WA
  • VIC
TypeNon-profit organisation
Operated byMND Association England, Wales and Northern Ireland

Four-day program for a family member or friend who is caring for a person with MND. It explores the physical and emotional aspects of caring so you are better able to look after a person with MND at home, while still taking care of yourself.

Location
  • ACT
  • NSW
TypeNon-profit organisation
Operated byMND NSW

MND carers Australia is a Facebook group open to carers of people with MND from across Australia, formed by several individual MND carers (not the MND Association).

Location
  • ACT
  • NSW
  • NT
  • QLD
  • SA
  • TAS
  • WA
  • VIC
TypeUnknown
Operated byMND carers Australia

MND NSW information service to answer questions from anyone who needs to know more about MND.

Location
  • ACT
  • NSW
  • NT
TypeNon-profit organisation
Operated byMND NSW

Two-day workshop which covers living well with MND and the services available in people living with MND. For people with MND, their families and friends.

Location
  • NSW
TypeNon-profit organisation
Operated byMND NSW

Two-day residential workshop for carers which focuses on the physical and emotional aspects of caring for a person with MND.

Location
  • NSW
TypeNon-profit organisation
Operated byMND NSW

One-day program providing a range of strategies to live well with MND and to maintain independence for people living with MND, their family and friends.

Location
  • ACT
  • NSW
TypeNon-profit organisation
Operated byMND NSW

Support groups provide an opportunity for people living with MND and their carers to meet regularly to chat and learn from each other.

Location
  • ACT
  • NSW
TypeNon-profit organisation
Operated byMND NSW

A service to enable people with speech or hearing difficulties to type and read your conversation, through a Relay Officer, entirely via a TTY, via internet relay on a computer or mobile phone or via a free app on a smartphone or tablet.

Location
  • ACT
  • NSW
  • NT
  • QLD
  • SA
  • TAS
  • WA
  • VIC
TypeGovernment - Australian
Operated byNational Relay Service

The palliative care team specialises in interventions that can improve quality of life for people with life limiting conditions.

Location
  • ACT
  • NSW
  • NT
  • QLD
  • SA
  • TAS
  • WA
  • VIC
TypeVarious private and public
Operated byPublic or private practitioners

Online forum for people with MND. Also collects data from people with MND.

Location
  • ACT
  • NSW
  • NT
  • QLD
  • SA
  • TAS
  • WA
  • VIC
TypePrivate company or practice
Operated byPatientslikeme

Peak organisation for people from culturally and liguistically diverse (CALD)/ non-English speaking backgrounds (NESB) with disability, their families and carers in NSW.

Location
  • NSW
TypeNon-profit organisation
Operated byMulticultural Disability Advocacy Association of NSW