Linking up with others

Online forum for people with ALS/MND.

Location
  • ACT
  • NSW
  • NT
  • QLD
  • SA
  • TAS
  • WA
  • VIC
TypeUnknown
Operated byALSForum

Care coordinators and case managers assist people to access health and community services.

Location
  • ACT
  • NSW
  • NT
  • QLD
  • SA
  • TAS
  • WA
  • VIC
TypeVarious private and public
Operated byPublic or private practitioners

Education and advocacy promoting health policy and health services for all people with chronic illnesses.

Location
  • ACT
  • NSW
  • NT
  • QLD
  • SA
  • TAS
  • WA
  • VIC
TypeNon-profit organisation
Operated byChronic Illness Alliance

A counsellor registered with the Australian Counselling Association provides counselling on the psychological and emotional aspects of living with motor neurone disease.

Location
  • ACT
  • NSW
  • NT
  • QLD
  • SA
  • TAS
  • WA
  • VIC
TypeVarious private and public
Operated byPublic or private practitioners

A clinical psychologist has specialised training in the assessment and diagnosis of mental health problems and the assessment and treatment of a wide range of psychological problems.

Location
  • ACT
  • NSW
  • NT
  • QLD
  • SA
  • TAS
  • WA
  • VIC
TypeVarious private and public
Operated byPublic or private practitioners

A social worker provides counselling on the psychological and emotional aspects of living with motor neurone disease.

Location
  • ACT
  • NSW
  • NT
  • QLD
  • SA
  • TAS
  • WA
  • VIC
TypeVarious private and public
Operated byPublic or private practitioners

Gather My Crew is a free, online help roster that lets people going through tough times to coordinate the practical help they need from friends and family.

Location
  • ACT
  • NSW
  • NT
  • QLD
  • SA
  • TAS
  • WA
  • VIC
TypeNon-profit organisation
Operated byGather my Crew

MND Advisors are qualified health professionals with specific local knowledge and experience of working with people living with MND and their families.

Location
  • ACT
  • NSW
TypeNon-profit organisation
Operated byMND NSW

One-day forum about MND for people living with the disease, their families and friends. Experts in the field give presentations on a variety of topics relating to MND and participants are encouraged to ask questions throughout the day.

Location
  • NSW
TypeNon-profit organisation
Operated byMND NSW

For people living with and affected by MND to share experiences and support with each other about the challenges of living with MND.

Location
  • ACT
  • NSW
  • NT
  • QLD
  • SA
  • TAS
  • WA
  • VIC
TypeNon-profit organisation
Operated byMND Association England, Wales and Northern Ireland

Four-day program for a family member or friend who is caring for a person with MND. It explores the physical and emotional aspects of caring so you are better able to look after a person with MND at home, while still taking care of yourself.

Location
  • ACT
  • NSW
TypeNon-profit organisation
Operated byMND NSW

MND carers Australia is a Facebook group open to carers of people with MND from across Australia, formed by several individual MND carers (not the MND Association).

Location
  • ACT
  • NSW
  • NT
  • QLD
  • SA
  • TAS
  • WA
  • VIC
TypeUnknown
Operated byMND carers Australia

MND NSW information service to answer questions from anyone who needs to know more about MND.

Location
  • ACT
  • NSW
  • NT
TypeNon-profit organisation
Operated byMND NSW

Two-day workshop which covers living well with MND and the services available in people living with MND. For people with MND, their families and friends.

Location
  • NSW
TypeNon-profit organisation
Operated byMND NSW

Two-day residential workshop for carers which focuses on the physical and emotional aspects of caring for a person with MND.

Location
  • NSW
TypeNon-profit organisation
Operated byMND NSW

One-day program providing a range of strategies to live well with MND and to maintain independence for people living with MND, their family and friends.

Location
  • ACT
  • NSW
TypeNon-profit organisation
Operated byMND NSW

Support groups provide an opportunity for people living with MND and their carers to meet regularly to chat and learn from each other.

Location
  • ACT
  • NSW
TypeNon-profit organisation
Operated byMND NSW

A service to enable people with speech or hearing difficulties to type and read your conversation, through a Relay Officer, entirely via a TTY, via internet relay on a computer or mobile phone or via a free app on a smartphone or tablet.

Location
  • ACT
  • NSW
  • NT
  • QLD
  • SA
  • TAS
  • WA
  • VIC
TypeGovernment - Australian
Operated byNational Relay Service

The palliative care team specialises in interventions that can improve quality of life for people with life limiting conditions.

Location
  • ACT
  • NSW
  • NT
  • QLD
  • SA
  • TAS
  • WA
  • VIC
TypeVarious private and public
Operated byPublic or private practitioners

Online forum for people with MND. Also collects data from people with MND.

Location
  • ACT
  • NSW
  • NT
  • QLD
  • SA
  • TAS
  • WA
  • VIC
TypePrivate company or practice
Operated byPatientslikeme